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Cyclic vomiting syndrome????anyone know anything

freebordLee 420

FreebordLee 420
May 1, 2009
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adrenaline-fueled.com
#1
So for the last year almost they have been trying to figure out what is wrong with me. I have been tooo many doctors and had many tests done. They still are not sure but now I am seeing another specialist who believes it is probably cystic vomiting syndrome. Basically at unpredictable times usually about every month or two my stomach starts cramping and knotting up. It is extremely extremely painful and uncontrollable vomiting and dry heaving goes along with this. Anyone know about medical marijuana and cyclic vomiting syndrome? When this happens I am usually so sick I cannot even grind my meds up or anything, its awful. If anyone knows anything about this I definitely have a few questions.

Thanks
 

COVaper

Hi, I'm Old!
Nov 24, 2009
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#2
Hi freebordLee

I was diagnosed with CVS bout 7 years ago. Try this link for more info about it.
Cyclic Vomitting Syndrome Association

I find MM works most of the time to relieve nausea. But then there are times when just the thought of MM makes me nauseous. I use MM as a tool to try and keep the nausea under control. The side effects of the prescription meds are very severe for me, so they are my last resort.

I first try a peppermint candy, if available I will take several showers with water as hot as I can tolerate, If still needed I will vape a bowl of MM (indica strains seem best for me). If I am still sick I consider the prescription meds then sleep.

Hope this helps. Good luck
 

sman

Hi, Im New!
Dec 18, 2008
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#3
freebord i have also been diagnosed with cvs. which i have been battling for he last 7 years. If you have any questions than i would be more than happy to try to answer.
The forum posted above is about as good as it gets fro some real info
 

CrazyKoufax

In The SkyYyYoOoO
Nov 20, 2008
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#4
feel better all

my stomach digests 25% of food, when normal is 50%.. dyspehia=such a burn, stop swallowing smoke :grouphug:
 
Dec 9, 2006
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#5
same stuff has been happing to me for years absolultey earthshaking-after about the 4 time i went into er and gave me iv and prilosc then i relized if i didn't eat i wouldn't have that problem-but that causes another set of problems so i see a dr. and take meds and hardley eat-first time i heard of this diagnoses--
 

COVaper

Hi, I'm Old!
Nov 24, 2009
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#7
FreebordLee
I have been away on vacation sorry for the delay.
I was not able to PM to answer your question. I do not have enough posts.

The worst triggers for a cycle seem to be stress, both good stress and bad stress. Good stress (hard for me to recognize) would be the excitement anticipating a vacation or visit from an old friend. Bad stress would be the usual, work, money, family, etc.
During times of stress it is extremely important to keep hydrated.
Certain foods can act as a trigger but it is not consistent. I am a chocoholic. Sometimes it will trigger a cycle other times not.
Lack of sleep can cause a cycle.
An indication for me that a cycle is coming is what I call slow stomach. After a meal it will seem like digestion has stopped. Whatever food just sits in the stomach with an uncomfortable full feeling. This can last for several days. If this happens whatever is in the stomach has soured and some sort of antacid may be a relief. Again it is very important to stay hydrated but very hard because you will not feel like adding anything to your stomach
I was cycling weekly. With the aid of MM and Acupuncture my cycles are about once a month. Much less severe in intensity and duration.

If you have more questions please ask away.

Best of luck. Hope you can get a handle on it and a diagnosis.

Regards
 

codeman420

^^ Is on the moon....
May 14, 2007
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#8
man i feel you.

I vomited every morning for 3-4 years. THey suspected cyclic but it was never diagnosed. They left it as IBS and GERD.. So.. I dont know what happened but it subsided drastically to just heart burn now (which i can do). Its strange. I do strongly sugguest you start exercising every day for 30 minutes. Just do it. DO it for 4 weeks, and see if it helps. It takes time for your body to change so just keep with it. See if it help, i bet it will.

I was prescribed aciphex and Bentyl (muscle relaxer) which definatey helped with cramping and the pain, but i was still getting nauseous and vomiting. Marijuana most days gave me drastic relief to the stomach, and increased the appetite since the Bentyl suppressed it.

Stay away from fast food, dairy, and cereal. Avoid Citrus juice and fruits, avoid High Fructose Corn Syrup and soda, avoid coffee and chocolate, dont eat tomatoes onions or peppers. Honestly man, for three years I ate at Subway every single day with Iced Tea, because it was the only thing that wouldn't have me cramping like hell in a hour or two.

Drink a butt load of water but not at the time of feeling sick.
I really feel for you man, Keep your head up and smile every day your alive. I know its painful, be thankful were not in worse conditions. Just keep that mental moral up, and your body will follow.
 
Dec 9, 2006
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#9
It sure is hell-they settled with gerds and ibs after years of tests and vomiting.My GI Dr. said it might be cannibis-but i was sick way before i started medicating, thanks again WTs
 

freebordLee 420

FreebordLee 420
May 1, 2009
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#10
Wow! thanks for all the info and help. Yea it really is terrible. I definitely am afraid to go near certain foods and I pretty much switch off between my main "safe to eat" foods. Even after eating these my stomach will sometimes be killing me. I have actually found hemp food products to be pretty safe as well, however these are harder to find. :thumb:
 

JLJ

Hi, Im New!
Feb 25, 2010
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#11
A few harm reduction methods I've used for my chronic lower and upper digestional issues...

Edibles or tincture help you to set up a regime of medical cannabis so that you don't have to experience the terrible symptoms.

Have a smoking devise on hand, filled with medication as back up in a drawer..so when you are really sick you just have to light the medication and inhale rather than go through the process of getting it ready.

Talk with all of your doctors candidly about your use of cannabis and how it helps. it is partially our jobs as consumers of the medical field to inform our physicians on the merits of medical cannabis.
 

Lynn

Mota Lovin Lynn
May 13, 2008
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#12
If you like the taste of ginger, it is great for helping food digest, and nausea. Reeds canndied ginger is great, or you can find crytalized ginger in the grocery store.... Good Luck! :hippie:
 

Heidiiina

New Member
Jul 14, 2008
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#13
i posted before when i was diagnosed with functional bowel disorder but after seeing a much better GI doc they have diagnosed me with cyclic vomiting syndrome. and damn does it suck!! 30,000$ later i finally figure out what the heck it is... ive been having a hard time dealing with the stresses of convincing my parents that mmj is one of the few remedies for this disease! It stresses me out just trying to deal with them. I hope to share my findings of other remedies too. i will be getting some ginger today, as lynn said i have heard great things about it!
 

freebordLee 420

FreebordLee 420
May 1, 2009
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#14
Your parents must not be very open minded. I was in the emergency room for this symptom over the weekend and the doctors are also thinking it could be anxiety. I was throwing up friday thru monday though. most awful thing ever
 
Dec 9, 2006
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#15
Going to pharmacy to get suppliments for food,really low on vitiman d and b and don't eat much food,wonder why? take care WTs
 
Mar 10, 2010
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www.lilblacktop.com
#16
I have had Cyclic Vomiting Syndrome for over twenty five years so I can imagine what you may have had to deal with. It is related to migraine. In fact, some docs call it abdominal migraine.

I've puked pretty much everywhere. At work (when I was working), driving, at restaurants, during sex and in aircraft.

One of the ways to diagnose CVS is that the attacks are strangely the same length of time. Mine, for instance, are twelve hours long. Almost always. Almost to the minute.

I consulted with THE CVS doctor. I think his name was Fleisher (something like that). He's got all the information on this syndrome.

He's found that the same things I use: hot shower/cannabis is how the majority of his patients sooth themselves.

If I can get into a hot shower before I start pukin' I can sometimes stop the attack. It relieves the nausea substantially.

For some folks a hot tub will also help with the nausea.

Pot will help, but basically you need your neurological system to shut down and reboot, just like with a migraine.

Panic attacks are a part of the syndrome and its a good idea to have something handy to combat that.

I take Ativan when I'm sure an attack is coming. (This is a pill, so if I take it when I'm already pukin' it's too late.)

Also, get your doc to prescribe compazine. Get both the pills and the suppositories if you can.

If you get the tranquilizers, compazine and pot into your system in time you can avoid the attack.

Also keep lots of pediatric popcicles around to replace your potassium and fluids if you do puke.

Hope this helps
lilB:grouphug:
 
Mar 10, 2010
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www.lilblacktop.com
#17
The "slow" stomach is a condition called gastric stasis and it also occurs with migraine. In fact, it's what usually causes the nausea and vomiting that can accompany migraine.

Not only can you feel this, but you can tell things aren't moving along quite the way they should by the way your clothes fit and what the scale says.

Plus, folks like us tend to be able to actually feel our intestines processing -- there's a name for this, but I forget what it is...something like hyper-sensitive viscera.

This, along with the nausea can make you feel like the inside of your body is too big for the outside.

To combat this I'll fast, or eat very lightly the day after a heavy meal or a day of munching.

Also, a nutritionist advised me to AVOID FIBER. Stick to soups and soft, easily digestible foods. Egg whites for protein. Peeled tree fruit. White rice.

Even so, I still get sick every night and morning.

Sometimes, I wonder if the physical act of laying down contributes to the nausea ('cause it's every night), or if it's a biological clock thing.

I'd be curious to hear of any of you have noticed any patterns or method to the madness.

Thanks.
lilB
 

Heidiiina

New Member
Jul 14, 2008
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#18
Hey lil B,

Great info you have! thanks for sharing!! So glad this is a semi active thread... cause its so discouraging having this!

I rarely get the migraine part to CVS (thats why it took me forever to have a diagnosis) but when i do have an attack I wake up every morning around 4am vomiting for about a week. My GI specialist told me to take 2 vitamins called L-carnitine and Coenzyme Q10 (you can get these at any nutrition store) . I just started taking these vitamins and no attacks yet. *knocks on wood*

Edit: I use to medicate up to 10 times a day and i find that I have less severe attacks when i limit myself to medicating only 1 to 2 times a day. its hard to cut back because of tolerance but taking a break for a week (when i was attack free) really helped lower my tolerance and makes the mmj that much more effective when I do have attacks.
 
Dec 9, 2006
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#19
don't really know but i could feel my espogus move like a vacume hose while vomiting pices of food or not.wierd-everything i eat has a negative impact on my body,diearea,vomit,bloating,painful stomach and body pain.I am under a Dr.s care ,so thats good. peace WTs
 

lilblacktop

Hi, Im New!
Mar 10, 2010
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#20
@ Heidiina:
Apparently, there's something to the trend you've noticed about your symptoms subsiding when you smoke less.

Check out this post:
http://www.news.com.au/story/0,27574...81-421,00.html

Most folks responding to the post thought it was bull, but in fact it spoke to my symptoms directly -- hot showers and all.

I've cut back which is hard for me, 'cause I've smoked daily for over thirty years. (I roll leafy shake from the neighborhood provider. It satisfies my need to smoke, but is very mild.)

Since I cut back seems my G.I. system works better.

Prolly should quit, but hopin' cuttin' back will be enough.

Good luck!