[ps-med]

My wife has been diagnosed with Ehlers-Danlos Syndrom (EDS) type 3, which is basically a collagen disorder that causes her signifigant pain in all of her joints. She is currently taking Vicodin and Norcos for the pain. I am concerned about the long-term health effects of these pain meds. She has tried MMJ but has not been sucessful recently. In the past she has used MJ and been able to snowboard and otherwise live pain free.

Anyone have EDS that is using MMJ for treatment? So far we have tried mostly edibles, but I am going to make a tincture and see if that is better. Anything that lessens the amount of Opiates is probably a good thing.

Mark

[ps-med]

Just an update:
For my wife it seems that MMJ actually seems to make her joint pains worse. Last night she had a hard candy, which for me work great at elevating my mood without zoning me too far out. For her she says they make her hurt worse. Another 5 weeks before the tincture is ready and then we will try that.

I know that EDS is rare, but not *THAT* rare. 1 in 5000 people have EDS.

[trustedon]

A physician may prescribe bracing to stabilize joints. Surgical repair of joints may be necessary at some time. Physicians may also consult a physical and/or occupational therapist to help strengthen muscles and to teach people how to properly use and preserve their joints. To decrease bruising and improve wound healing, some patients have responded to ascorbic acid (vitamin C) by taking 1 to 4 grams daily. Prior to starting a regimen such as this, it is imperative to consult with your physician for specific recommendations.

phentermine

[rpeg]

oh! i have EDS (hypermobility type) as well! I usually use indicas (mostly different OG strains) to relax the muscles that are so tense from holding my joints in place all day. This does mean I dislocate a little easier, but the short-term pain from my ankle or finger dislocating is way preferred to the constant muscle tension.

[ps-med]

Originally Posted by rpeg

oh! i have EDS (hypermobility type) as well! I usually use indicas (mostly different OG strains) to relax the muscles that are so tense from holding my joints in place all day. This does mean I dislocate a little easier, but the short-term pain from my ankle or finger dislocating is way preferred to the constant muscle tension.

How were you diagnosed? What pain regiment do your doctors have you on?

My wife mostly just uses Vicodin as needed and this seems to be working well for her. I am concerned about the long-term effects of using so much acetamenophin. Her current Primary doctor is pretty much worthless and it has been almost impossible to get in to the pain clinic to find out what options she has for pain management.

[stonr13]

My mother also has EDS and is taking several pain meds :thumbdown: She just recently tried MMJ and the result is she felt less pain :thumbup:, She has only tried it a couple of times, so I am trying to get her to use more MMJ and less pain pills!

[ps-med]

Originally Posted by stonr13

My mother also has EDS and is taking several pain meds :thumbdown: She just recently tried MMJ and the result is she felt less pain :thumbup:, She has only tried it a couple of times, so I am trying to get her to use more MMJ and less pain pills!

There is supposed to be a synergistic effect with combined MMJ and Opiate drugs. Basically the two work together to lessen the need for either. My wife will occasionally use MMJ, but she finds that the opiates work the best for her.

[stonr13]

Thanks for the info, I'll keep you posted on changing results :thumbup:

[ps-med]

Originally Posted by stonr13

Thanks for the info, I'll keep you posted on changing results :thumbup:

Only very small amounts of MMJ are needed for this synergistic effect. Edibles seem to be better for long-term use, but be careful that you don't over do it, just need a little bit of MMJ.

[red_eye_ked]

I could be going off track a little here but once I read that mmj for pain is a tricky med, because a little will help the pain, to much will start to make it worse again. ( I am not sure how true that is but it sounds reasonable ) I also had a doctor tell me pain is like a sponge. You can throw vicoden at it, but until you fill the sponge you will not really feel any pain relief or effects.

I used to take vicoden for migraines ( I was up to 3 and 4 a day of the 750's) However migraines are different kind of pain, so its not the same as for your wife. I also have Glaucoma and I shattered clavicle in 3 places, that being closer to the type on pain ( not exactly but closer ) I use blue dream, and or grand daddy purple, both with great effects. I also would suggest your wife try a vaporizer. It may feel better for her to inhale a dose of her meds through a balloon, or whip.

Lastly I also like the edibles as I get a lot of bang for my buck there. I eat 1 square from a candy bar and I am good all day. and don't need to medicate till after work. I also find edibles help more w/ shoulder pain then anything. I have also felt it helps keep my headaches at bay.

SO, I hope she feels better, I am sorry to hear about her (or your) pain. I guess in all that I was really saying try smaller doses, get off the vicoden ASAP they will destroy her liver. Sure they help with the pain some, but if its going to kill her just by taking it that can't be good. I would avoid Vicoden as much as possible. I also was thinking if it's a mussel pain, maybe a mussel relaxing med?

good luck, and good health to you!

[rpeg]

I also have some sort of rhumatoid arthritis thing going on, so when I went to the rheumatologist for that, he realized that my range of motion is WACK and we went from there. It's definately hypermobility type, rather than Classical or Vascular.

For pain management, all I really do is splint and swathe as needed. They wanted to start me on some heavy-duty drugs (injectables, etc.) and I told them to give me 6 months to explore other options. Went and got my medical marijuana letter, and I am completely off all meds for the arthritis and EDS! Still take an anti-depressant everyday, but 1 pill is much preferred to the 7 pills I was taking!

[stonr13]

My mom has had approximately 6 left hip replacements and another 6 dislocations with having to wear body armour from her waist down to and including her foot. She just had her right knee replaced. Has anyone had such horrible luck as my mom has had :confused1: Slowly but surely she's starting to use MMJ more often (1 or 2 vape hits max.) seems to do the trick :thumbup: She still takes pain meds, Because the amount of pain she suffers from, MMJ is just not enough alone :crying: but seems to help alot. Grand Daddy Purple is what is working for her right now, Any suggestions on other strains that would work well for her?? Something with a not to narcotic like feeling but more pain relief body high! LOL & Hope everyone has a GREAT weekend