[BabyBoomer]

Has anyone ever taken Topamax for migraines?

My neurologist wants me to start taking Topamax as I have been in a migraine flare for the last three months. I hate to start any new pharmaceuticals. It seems like it takes ten weeks for you to work your way up to the full dosage and then if that doesn't work, it takes ten weeks to get off of it.

The 100 mg Zoloft that I take daily is suppose to help in preventing the migraines, but lately it has not been working. And I wonder if the cannabis usage, just started last Sept. is causing too much serotonin which in turn can cause migraines.

The doctor that I want to see about this does not take Medicare, and my neurologist as all my other doctors, are not 'cool' to MMJ.

Any one have any experiences along these lines that they would like to share with me? Two trips a week to the ER is not how I want to spend my time.

And the Imitrex, which use to work, no longer does, and I have just found out that you cannot take Imitrex when you are taking Zoloft, too much serotonin.

Thanks for any help out there.

Cyber Hugs,

BabyBoomer




.

[M3sGlitterGirl]

Originally Posted by BabyBoomer

Has anyone ever taken Topamax for migraines?

And the Imitrex, which use to work, no longer does, and I have just found out that you cannot take Imitrex when you are taking Zoloft, too much serotonin.

BabyBoomer

Hi BB. I too suffer from migraines. I am currently taking Relpax, which only works half the time and is VERY expensive. My doctor has been trying to get me to take Topamax, but I really don't want to take pills every day.

I got my first migraine a couple of years ago and was given two different types of meds samples. I just started getting migraines again last December and my doctor gave me Relpax and suggested I try Topamax daily as migraine prevention.

I have recently tried LA Confidential and had immediate relief! (I don't understand it, but M3 says it's because of the CBD/CBN content. Really, what matters is that it worked!)

Anyway, how many migraines do you get a month? I get between 2-6 a month, but my doctor thinks it's "in my head," and wants me to get psych counseling. Why would I induce such experiences? That makes no sense to me. I think it's time for a new doctor.

M3 has tried Immitrex a long time ago, and said it works but made him feel off balance and weird.

Please let me know how the Topamax works. Relpax runs about $20/pill, and like I said before, it only works half of the time.

Thanks again. :)

*~GG~*

[AQUAFINA]

I have migrains once in a while and have found that migrinal helps with me let us know how you are doing

[brian112460]

i tried topomax didnt help but didnt hurt drink a lot of water if yuo do
also look up cluster headache as this is what topomax is used as a prevenative for among others
try 1 + a day i wish i counted by month had the 1st 1999 never left me alone since
also try trigyminal neuralgia check spelling
intresting info for migraine suffers
talk to alot of people if they want to do a spinal epideral i had 2 worst mistake i did to try to stop the pain

now i hear about zoloft
sent me to er
peace
have a pf day (pain free)
brian

[M3sGlitterGirl]

Originally Posted by brian112460

i tried topomax didnt help but didnt hurt drink a lot of water if yuo do
also look up trigyminal neuralgia

http://www.tna-support.org/newlook/definition.htm

Thank you Brian. I found this link. I have never heard of this condition. Now I can talk to my doctor about it. For some reason, he doesn't seem to understand the severity and frequency of my migraines. I am glad you guys understand (and listen)!

*~GG~*

Originally Posted by BabyBoomer

Has anyone ever taken Topamax for migraines?

My neurologist wants me to start taking Topamax as I have been in a migraine flare for the last three months. I hate to start any new pharmaceuticals. It seems like it takes ten weeks for you to work your way up to the full dosage and then if that doesn't work, it takes ten weeks to get off of it.

The 100 mg Zoloft that I take daily is suppose to help in preventing the migraines, but lately it has not been working. And I wonder if the cannabis usage, just started last Sept. is causing too much serotonin which in turn can cause migraines.

The doctor that I want to see about this does not take Medicare, and my neurologist as all my other doctors, are not 'cool' to MMJ.

Any one have any experiences along these lines that they would like to share with me? Two trips a week to the ER is not how I want to spend my time.

And the Imitrex, which use to work, no longer does, and I have just found out that you cannot take Imitrex when you are taking Zoloft, too much serotonin.

Thanks for any help out there.

Cyber Hugs,

BabyBoomer




.

this there payed site with there info! now i am talking this drug for 1 year and 4 months...just weight loss and no more migranies so far...i have 3 life threating illness... as found by the state of california ...the socil security disabilty still is rediagnosing...with any medicine get all the info you can!

Originally Posted by BabyBoomer

Has anyone ever taken Topamax for migraines?

My neurologist wants me to start taking Topamax as I have been in a migraine flare for the last three months. I hate to start any new pharmaceuticals. It seems like it takes ten weeks for you to work your way up to the full dosage and then if that doesn't work, it takes ten weeks to get off of it.

The 100 mg Zoloft that I take daily is suppose to help in preventing the migraines, but lately it has not been working. And I wonder if the cannabis usage, just started last Sept. is causing too much serotonin which in turn can cause migraines.

The doctor that I want to see about this does not take Medicare, and my neurologist as all my other doctors, are not 'cool' to MMJ.

Any one have any experiences along these lines that they would like to share with me? Two trips a week to the ER is not how I want to spend my time.

And the Imitrex, which use to work, no longer does, and I have just found out that you cannot take Imitrex when you are taking Zoloft, too much serotonin.

Thanks for any help out there.

Cyber Hugs,

BabyBoomer




.

this there payed site with there info! www.rxforsafety.com now i am talking this drug for 1 year and 4 months...just weight loss and no more migranies so far...i have 3 life threating illness... as found by the state of california ...the socil security disabilty still is rediagnosing...with any medicine get all the info you can!

[endlesssky]

my partner has migraines too, and sno cap reAL GOOD SNO CAP helps!! jack flash helps!! really good sativa's help, green crack helped her tummy, we had to go to the ER after her demeral shot at the .DR office it rebounded back, and all the ER gave her was reglan for vomiting and hydrated her and it went away till mornning, and came back, we then decided they made her toxic on lithum, and she is better know ! i called the DR and told him what happened again, the dumb ass increased her again after he made her toxic last time at that amount, why don;t they read that chart, isn't what it's their for. they[ the dr/s won't listen] to patients anymore they think they can tell whats wrong by the way i look, you look to good to be dying, that what he told me!!!!! i'm yellow now and i look good, they must be blind, i have a dam tan, i refuse to stay in my wheel chair, i don;t want my body to detriate, so i push myself to go outside , i hate being in the house, i refuse to give up and lay down and die!!! they hate me and i hate them so it's even hahahehehehahah see ya endlesssky

[MMM420SoCal]

Originally Posted by endlesssky

my partner has migraines too, and sno cap reAL GOOD SNO CAP helps!! jack flash helps!! really good sativa's help, green crack helped her tummy.

we had to go to the ER after her demeral shot at the .DR office it rebounded back, and all the ER gave her was reglan for vomiting and hydrated her and it went away till mornning, and came back, we then decided they made her toxic on lithum, and she is better know !

i called the DR and told him what happened again, the dumb ass increased her again after he made her toxic last time at that amount, why don;t they read that chart, isn't what it's their for. they[ the dr/s won't listen] to patients anymore they think they can tell whats wrong by the way i look, you look to good to be dying, that what he told me!!!!!

i'm yellow now and i look good, they must be blind, i have a dam tan, i refuse to stay in my wheel chair, i don;t want my body to detriate, so i push myself to go outside , i hate being in the house, i refuse to give up and lay down and die!!! they hate me and i hate them so it's even hahahehehehahah see ya endlesssky

Props to you Endlesssky, try not to give up.

See I broke your post up in the quote so its easier to read..sometimes I get lost in the paragraph when theres no page breaks.

I wish the docs would listen better also... I just had one write me a script for 2 drugs Im specifically allergic to. Maybe they're trying to kill us off with bad healthcare so they wont HAVE to CARE anymore?


M3

[endlesssky]

they don;t have her on any meds for migraines, i think she tried all of them and no go for her, but mmj hepls her alot , like i said the sativa/s work a great deal for her. jack flash she ravs about and snocap, the green crack would of worked for the migrine i think if she had not been toxic on lithum, they dropped the dosage, i made her skip it twice, that stuff will cytalize in your kidneys, thats why you get a metalic taste in your mouth and can;t walk right and vomit none stop till the level comes down, it's good drug , really it's mineral they have lithum baths in france that people go and bath in and they swear it rejuvenates them and makes feel wondrfull, , i don;t know anything about topamax, but i do know about seratonin, to much will make you so sick, so be carefull and watch out what you take, check everthing they give you at web MD, i do!! don;t trust them, they are to busy to make the right call.

[endlesssky]

sorry i i have to figure out how to write right. i have to put in more quations,. ok i will try and be better at it. sorry, dam dr.'s are really tying to kill us off. sorry i have to go vomit,!!

hey sis, sorry to hear about your head issue, and the others too,
know them fuggers are the worst, and words don't even do it justice and tell one of those disimpowering doctors who scare the shit out of ya just to keep
ya under there spells,use doctors for what ther good for information, but you always make the decission, final on dat eh, i take it for seizure disorder, but i am not real sure about any meds , i am thinking that the blood vessels are shrinking and that makes for constricting,,,,, nice thing about topomax you don't haft to get blood work all the time and worry about liver failure. yep so iam with ya and see ya figuring it out soon, healing is now, yep thats it, look up dr yuen ,yuen method, he believe that and teaches that and has work with em all, he was david caradine teacher from kung fu, he is freeken amazing dude and a sholin monk tobute. yep i see ya finding the way and the rest too, don't take any shit off those doc thou, stay impowered, and lest em know to, who's the boss,,,,, no giving away your trust to those fuggers
abide i you and trust you, i do and i believe in you too, and me of course
i love me very much and i don't let them do that any more, ever
after going the other way and finding they don't know shit,,, experiance does thou and workin it and reducing it and clearifying..
"in lakesh" you are just another myself. Mayan saying
peace and loving kindness
Eagles
;-)-(8)=nmrk!

[turtle]

Champagne is supposed to work.
The only time I had some, I didn't have the migraines, so I couldn't check it out.

[tloctwisted]

I feel for you. I have migraines that end up in the ER also. I was taking Relpax or for an alternative Zomig. I am new to alternative meds, but I have not taken any Relpax since I started medicating with Cannibus. I specifically medicated with a really good sativa. I also started keeping track of what "triggers" would bring on my Migraines. Chocolate, stress allergies, certain foods. Then I also keep track of what time of day they most frequently happen ect. I cut down on sodas,,(that was hard) and I try to drink more water...at least that way you can rule out other things that might cause them....
Hope that helps
Trish

[firemonkey]

I used to be on that merry go round too, BB. I finally got off of it when I came back to MMJ. I've posted before, I brought in a TOTE BAG full of meds they had me on, and they wanted me to start on yet another one. I finally had enough. Each one would work for a while, then either stop working, or bring on a new gross side effect.

I found a doctor that helped me a lot. Like the opposite of your serotonin *helpers*, this stuff *blocks* the nerves from receiving the signals. Like this: ]0[ (that is a nerve ending, padding that blocks receptors, and a nerve ending) They do it at Kaiser up here in Nor Cal. It's a shot, four times a year.

I know when I am coming up on my next one! They start to creep in. I also have to make sure my *eyeglasses* are updated every single year. The freshest prescription I can get for my glasses helps a lot.

Hey, when my shots are new, my glasses are new, and I'm not driving a lot, I'm just peachy!! :smile2:

[MMM420SoCal]

Originally Posted by firemonkey

BAG full of meds Each one would work for a while, then either stop working, or bring on a new gross side effect.

I found a doctor that helped me a lot. Like the opposite of your serotonin *helpers*, this stuff *blocks* the nerves from receiving the signals. Like this: ]0[ (that is a nerve ending, padding that blocks receptors, and a nerve ending) They do it at Kaiser up here in Nor Cal. It's a shot, four times a year.

Orale FuegoMonkey!

I have the same issue with the pain meds, and everyone of the docs and most my family think Im a doper cuz I get serious tolerances in quick order, which makes the med so wholly ineffective I need to use 2 then 3 then 4x what it says to, which is why I skipped the painkiller cycle this time around and went staight to the dolophine for pain.

As for your doctor and the nerve-blocking, can you tell me the exact name for that procedure/course of treatment?? I want to do something like that to fix the paralytic presure on the nerves in my spine that make life agonizing...

Good post Monkey, thanks for any help you can offer...


M3

[M3sGlitterGirl]

Originally Posted by tloctwisted

I feel for you. I have migraines that end up in the ER also. I was taking Relpax or for an alternative Zomig. I am new to alternative meds, but I have not taken any Relpax since I started medicating with Cannibus. I specifically medicated with a really good sativa. I also started keeping track of what "triggers" would bring on my Migraines. Chocolate, stress allergies, certain foods. Then I also keep track of what time of day they most frequently happen ect. I cut down on sodas,,(that was hard) and I try to drink more water...at least that way you can rule out other things that might cause them....
Hope that helps
Trish

Hello Trish. I haven't heard of Zomig yet, but I will ask my doc about that. I did try Maxalt MLT (meltable tablets), and one worked an hour after taking it and the other did nothing.

I have noticed some triggers. Stress is a big one for me. I don't have food triggers (that I know of), but I have noticed that if I'm stressed and haven't had any coffee in a few days, I can get a migraine. If I drive without sunglasses on, the sunlight bothers my eyes and I start to get a headache.

I finally realized that once I get a mild headache and do nothing about it, it becomes a full-blown migraine and I am left suffering for hours.

I used to take Advil for headaches on a regular basis, until I figured out that I'm allergic to Ibuprofen. My feet, ankles and legs swell when I take it!

How often do you migraine sufferers get migraines? I get 2-6 monthly and like I mentioned before, my doc thinks it's in my head (psychological). I haven't been to an ER yet, but they are so painful that I would do ANYTHING to stop them.

Any more advice? Have any of your doctors suggested psychotherapy/counseling? I'm not against trying it, but I really do NOT think that I'm psychologically making myself go through this.

*~GG~*

[firemonkey]

OK, here goes. I am going to say what it is, but PLEASE read the whole thing first! This product is used for blocking nerves, but not for everywhere in the body. It is FANTASTIC for tension-headache people. My migraines used to last for 8 days!! I wanted to take a drill set and make a hole in the side of my head. No more.

This product is used for a lot of weird things too, like super sweaty armpit people (making it stop), to all kinds of nerve pain. It is fully covered by INSURANCE (yay!) if not used cosmetically. Kaiser uses it medically.

It is Botox. I NEVER get week long migraines any more. It is the purest relief I have ever had. I have been doing it for about 4 years now, 4 times a year. They give me a series of shots around my temple and crown, down to my neck.

Most people have this gut reaction like: "OMG! You shoot botulism into your face!!" when that is not true at all. Please ask your doctor about it, and please read up on it before freaking out. Let me warn you that the doctors get big perks for *prescribing* and not *fixing* your problem, so you may have to ask FIRMLY! I'm so happy to be off that drug treadmill.

I now get it in between my eyes too, but I have to pay for that. New studies show that if you are UNABLE to frown, you may be able to cut out depression too. Let me tell you that I get the most *intense* relief from them. That nerve into your eye socket will trigger migraines too. If you have ever had a headache- migraine or tension, or cluster, that lasts for more than 2 or 3 or 4 or 5 days, you will try anything. You know.

I rarely get headaches at all now. But I always know when my due date is for the next set! They start to creep back in. Especially if I drive a lot in the sun, or get really stressed.

I hope this helps somebody. Try it once. Pay for it if you have to. It goes away, so it is not permanent. I went from wanting to drill holes in my head (!) to pure, all the way gone, relief! I heartily recommend trying it!

Love, Firemonkey. :smile2:

[BabyBoomer]

My neurologist recommended Botox but Medicare will not cover it. Also my pain management doctor uses it. Medicare will pay for the cortisone injections, as many as I want, but not the Botox.

But I will bring this up to them again and ask that they appeal Medicare's decision.

I want to thank all of you so much for your posts. So many have had the same experience where the doctor gets out the prescription pad and says "try this" and your precious body is once against filled with poison.

And it just seems that the Topamax is just another drug that my poor old body does not need.

firemonkey, I'm going to again attempt to get Medicare to go the Botox route. I'm so glad that you have found something that works for you.

Bless ALL of you,

Thank you again and again.

Biggest of Cyber Hugs,




BabyBoomer


.

[brian112460]

i too tried every thing (almost)

botox has a web site of drs that use botox for headache/migraine
it had dr kudrow listed(headache specalist )
and lisas father. i was told over a year ago that they are $$$$$$$$$$$$$
and botox was not recomend im like what????it only deadend the nerve and is only tepoarary and in high dosage which rules out most if not all ins also the side effects at the inj site will leave you well lets say not good
but check it out if you do and it works please let me know
peace and be well

brian

[firemonkey]

It works so well for me I *pay for it* myself!
Yes, it hurts the wallet, and some is taken care of, but the pain in my wallet is nothing like the pain in my HEAD! Best of Luck talking to your doc. Everyone, feel free to PM me if you need more info. Doctors are just now jumping on the bandwagon for this. Read as much as you can to arm yourself beforehand!

FM:smile2:

[firemonkey]

Brian, see if you can do a small test shot. I have never, ever had anything other than temp *slight* swelling at needle site which I promptly forget about. (Is that what happens whenever someone sticks a needle in you???) The prices are coming down too. Best of Luck!
:smile2:

[BabyBoomer]

Originally Posted by brian112460

i too tried every thing (almost)

botox has a web site of drs that use botox for headache/migraine
it had dr kudrow listed(headache specalist )
and lisas father. i was told over a year ago that they are $$$$$$$$$$$$$
and botox was not recomend im like what????it only deadend the nerve and is only tepoarary and in high dosage which rules out most if not all ins also the side effects at the inj site will leave you well lets say not good
but check it out if you do and it works please let me know
peace and be well

brian

I was the patient of Dr. Lee Kudrow (Lisa's Dad) and Dr. David Kudrow (Lisa's brother) in 1994 when Imetrex tablets were in clinical trails.

I am going to do a lot of phone calls and contacts first thing Monday morning. Thank you again, everyone.

Cyber Hugs,

BabyBoomer


.

[BabyBoomer]

Originally Posted by brian112460

i too tried every thing (almost)

botox has a web site of drs that use botox for headache/migraine
it had dr kudrow listed(headache specalist )
and lisas father. i was told over a year ago that they are $$$$$$$$$$$$$
and botox was not recomend im like what????it only deadend the nerve and is only tepoarary and in high dosage which rules out most if not all ins also the side effects at the inj site will leave you well lets say not good
but check it out if you do and it works please let me know
peace and be well

brian

Hi Brian,
Just got off the phone with Dr. Kudrow's office and they do not do botox injections. I'm going to do some more research on the botox web site and see if I can find a doctor that does. BTW, Dr. Kudrow does take Medicare. I'll post later. Have a very good pain free day.

Cyber Hugs,

BabyBoomer


.

[brian112460]

reaction at site was deadned nerves and transmiters like a deadzone at the inj i have lost to much motor use to lose any more not from needle but the botox
shit they had me on home iv for a long time flushing out that crap with a line going up the arm into the chest eeeweweewee also blood test needles this and that i looked like a h freak for almost 2 years ops tests retests etc

when i went to kudrow he was listed as a dr that uses botox from botox web site
but i guess that changed

as with anything new check it out everyone reacts different


i cant sleep on vic and morphine causes pain yes triggers pain what a bitch when i was in the hosp
q did you check out cluster headache as it is different than migraine and one med does not help the other and vice versa pdr states usage of topomax for cluster headaches not migraines
when i cant get to mmj i try o2 at 8 to 10 lit a min helps keep out the bad thoughts (yea those bad thoughts they do not call them suicide headache for nothing )when the pain kicks in real fast just keep all flame and heat source etc and o2 apart or edibles only near o2

have a pf day


brian