[Mindfury]

for HCV? looks promising for the peeps with type 1 genotype.I'm going to try to get in on the next clinical study, just missed the sign up for the one going on now.

http://www.hcvadvocate.org/hcsp/arti...therapies.html

Here is a copy of the .PDF attached.
Hope Springs eternal!!

[Mindfury]

Originally Posted by Kushcollective2

http://www.hcvadvocate.org/hcsp/arti...therapies.html

Here is a copy of the .PDF attached.
Hope Springs eternal!!

thanks, the biln formula is no longer in trials as it caused heart problems in mice. The vx-950 is the one that looks promising, i have researched it somewhat..thanks again.

Originally Posted by Mindfury

thanks, the biln formula is no longer in trials as it caused heart problems in mice. The vx-950 is the one that looks promising, i have researched it somewhat..thanks again.

Unfortunatly that is the way with numerous New Treatments and Therapies.. Keep plugging away, Medical Marvels happen when you least expect it. Keep us updated on your HCV treatments.. There are many HCV patients out there. Please share your stories and past treatments. Remember Information is Power. The more you learn, the less scary it is.
And I'll tell Labrat to stay away from the Biln..

[labrat]

i as you know have hep C my doctors have given me no meds what so ever for it!!! i do do a liver MRI with contrast every for months for a couple lisions there!! that havent grown!!! iam not much with numbers but my last blood test my hep C, RNA.PCR.IUs/ml .218oooo ref, HIGH-VIRAL LOADnow the HEP C RNA QUANT 9PCR) ..6.34,,high now i had a AST of 164and norm is like 14-59? .ALT 221....norm 21-72<<< anybody understant this jibbersh?? peace lab rat

Fury probally can better than I. I do know that your AST / ALT enzymes look like they are way off scale.

[eclectic]

All these pharmacueticals will do nothing but harm your body
Curing the problem at its cause is the key!

Treatments such as colon cleansing, liver cleansing, detoxification, healthier diet, herbal remedies, homeopathic treatment, acupuncture, bio-meridian stress analysis, yoga, pH testing and adjustment, chiropractor, and MEDICAL MARIJUANA are all promising treatments!

Interesting how none of these are endorsed or accepted by the DEA or the FDA.

Because they actually work and cure you and don't just make you sicker and sicker; which produces profits for them.

[endlesssky]

will the new treatment work if your already in decompensation, my enymes went down and my liver shunk to normal size maybe a little smaller, but it hurts like hell, they put me on pridinzone to keep my blood sugar up as i also have Addisons decease plus my liver isn;t helping my blood sugar stay up either. two of the DR fought about the Addisons, so i went a got a secound opion and confrimed what the specalist missed. and i am going to UCSF next week and then on to UCLA next month for the Addisons, they don;t give me long! but i don;t care, just one day at a time and some quality life will be good. i was wondering about the new trials as i have geno type 1a or its the worst one to get it keeps mutating, anyway.what sucks is, all my socalled support left when i got so sick, and now my partner job put her on part time and we lost our insurance and half our rent. we are in big time trouble, and no meds anymore i have gone to my limit and i just can;t ask anymore everyone has done enough already!! you know she missed work cause i was sick and had none to watch me. i;m doing better today and so i try real hard just to make sure my need are met for today and hers. and thats enough for now!! i could use some good new s about hep c treatments Endlesssky

[Mindfury]

Originally Posted by endlesssky

will the new treatment work if your already in decompensation, my enymes went down and my liver shunk to normal size maybe a little smaller, but it hurts like hell, they put me on pridinzone to keep my blood sugar up as i also have Addisons decease plus my liver isn;t helping my blood sugar stay up either. two of the DR fought about the Addisons, so i went a got a secound opion and confrimed what the specalist missed. and i am going to UCSF next week and then on to UCLA next month for the Addisons, they don;t give me long! but i don;t care, just one day at a time and some quality life will be good. i was wondering about the new trials as i have geno type 1a or its the worst one to get it keeps mutating, anyway.what sucks is, all my socalled support left when i got so sick, and now my partner job put her on part time and we lost our insurance and half our rent. we are in big time trouble, and no meds anymore i have gone to my limit and i just can;t ask anymore everyone has done enough already!! you know she missed work cause i was sick and had none to watch me. i;m doing better today and so i try real hard just to make sure my need are met for today and hers. and thats enough for now!! i could use some good new s about hep c treatments Endlesssky

i have a link where you can read the case studies of the clinical trials of the new meds, the xv509 i think it is called looks very promising, i am going to try and get into phase 3 the final clinical trial, not sure if i will be able to make it another 3-5 years, which is what they anticipate a"cure".
this link is very informative,
http://www.hcvadvocate.org/hepatitis/hepatitis_C.asp
hope you can find what you need to know there.
thanks again KC

[Mindfury]

LR, i havent had a viral load test done in a few years, last one was around 850,000 i think, not sure what it meant, as i heard it can go into the millions. my doctor i had at the time was clueless, as most of the ones i have spoken with.I had an ultra sound done, i didnt ask the tech how it looked , because they arent supposed to say anything, but she seemed, a bit odd, i could have been just paranoid. The doc said it was ok, but, i didnt feel to secure. my gf is calling me, i have to go, peace!

[Flyinghigh63]

Originally Posted by Mindfury

LR, i havent had a viral load test done in a few years, last one was around 850,000 i think, not sure what it meant, as i heard it can go into the millions. my doctor i had at the time was clueless, as most of the ones i have spoken with.I had an ultra sound done, i didnt ask the tech how it looked , because they arent supposed to say anything, but she seemed, a bit odd, i could have been just paranoid. The doc said it was ok, but, i didnt feel to secure. my gf is calling me, i have to go, peace!

I have Hep C too and I been through the Treatment 2 with pegasy and the pills with No Luck.. YUCK... and my viral load was at 25 mil and my Doc said that Not the best way to see how bad ur Liver is by Viral Load.. he says it better to do a Byiopyse and tell that way how far the liver is destoryed..

I am not ready for anymore Treatment at this time and just going to wait and see how it goes in the next few Yr on those trial drugs..

[Mindfury]

Originally Posted by Flyinghigh63

I have Hep C too and I been through the Treatment 2 with pegasy and the pills with No Luck.. YUCK... and my viral load was at 25 mil and my Doc said that Not the best way to see how bad ur Liver is by Viral Load.. he says it better to do a Byiopyse and tell that way how far the liver is destoryed..

I am not ready for anymore Treatment at this time and just going to wait and see how it goes in the next few Yr on those trial drugs..

I am sorry to hear the Peg didnt work. I was reading soem article the other night. It would seem that they finally admit interferon does nothing. there are a few other things in trial that look promising, Hope they pass soon, my liver pain is becomming bother some. I read that stuff here
http://www.hepatitis-central.com/mt/

Peace

[Flyinghigh63]

Originally Posted by Mindfury

I am sorry to hear the Peg didnt work. I was reading soem article the other night. It would seem that they finally admit interferon does nothing. there are a few other things in trial that look promising, Hope they pass soon, my liver pain is becomming bother some. I read that stuff here
http://www.hepatitis-central.com/mt/

Peace

Thanks for the web site and I have checked into the new treatment but still going to wait for the future to come out with some thing better..
I am taking one day at a time..

[endlesssky]

i have hep c too, and hempilla B and i am missing factor!! and one other blood disorder , i just forgot what the thrid one is, i have tried both treatment and it was a no go both time;'s now after years of CT scans and the dye damages my liver everytime now they want an MRI of my liver to see if i have a tumor, i already had a leison, they saw but it moved and leison don't move they told me, but they stopped looking now i am sick as dog, and now i have Addison's disease, which is Adrenal failure and they put me on prdnizone which lowers the immune system and i get way sick, and i am home bound now, i cannot travel, i vomit everyday and because of the prdnazone i have dieabeties, now they will never give m a liver, i have been to Standford and UCSF and they both truned me down cold said i was to complicated. i can't fight that!! so i just take it day by day,, but tommrow might be the last time i post for a while, because they are useing dye in te MRI and my ammioina level will rise very high, and it will take mouths for me to filture it. i can't filture my oun bactria, how in the hell do they exspect it to filture the dye, i guess i better pray bigtime, anyway, i'm just hanging in , see ya all Endlessky:partysmile:

[Flyinghigh63]

Originally Posted by endlesssky

i have hep c too, and hempilla B and i am missing factor!! and one other blood disorder , i just forgot what the thrid one is, i have tried both treatment and it was a no go both time;'s now after years of CT scans and the dye damages my liver everytime now they want an MRI of my liver to see if i have a tumor, i already had a leison, they saw but it moved and leison don't move they told me, but they stopped looking now i am sick as dog, and now i have Addison's disease, which is Adrenal failure and they put me on prdnizone which lowers the immune system and i get way sick, and i am home bound now, i cannot travel, i vomit everyday and because of the prdnazone i have dieabeties, now they will never give m a liver, i have been to Standford and UCSF and they both truned me down cold said i was to complicated. i can't fight that!! so i just take it day by day,, but tommrow might be the last time i post for a while, because they are useing dye in te MRI and my ammioina level will rise very high, and it will take mouths for me to filture it. i can't filture my oun bactria, how in the hell do they exspect it to filture the dye, i guess i better pray bigtime, anyway, i'm just hanging in , see ya all Endlessky:partysmile:

Wow I Sorry to hear that!! I can't imagen going through all of that and find no hope on the other side ! My heart goes out to You..

[Free 2 b me]

I also have HCV and am genotype 1A and did all the tests spoken of in this thread. My Dr. told me the same thing about the viral load not being the "end all be all" of telling the condition of the liver. He said he had to do a biopsy. Not fun, none of it for sure......but I have to say that so far and although it keeps me sicker than a dog most days, but so far my viral load went to undetectable after just 8 weeks on the Pegasys/Ribavirin treatment. I had the chance to get into a clinical trial, but that would mean at least a 7 hour drive once a month (if not more) plus any problems would have to be dealt with down in the valley, so I decided to do the Pegasys and so far, no return. Next week will be my halfway point and then I've got another 24 weeks to go, but I really wish that next week would be my last week. I know the trials that were going on at UCD Sacramento were showing some promise, but I've kind of stopped researching since the Pegasys seems to be working. I wish you the best in your search for treatment...I know when I started, the specialist gave me about a low 30% chance of any kind of recovery. I'm hoping to show him....lol. Hang in there all my fellow Heppers.....we'll beat this or get a good grip on it soon. Thankfully it's a slow moving disease for the most part.

Peace and One Love,
Free

[Oldog4tz]

the sad fact is that many (most?) docs -even the ones that call themselves hepetologists (there is no no such actual specialty) - know little about HCV - generally viral load below 800,000 is considered "low" for hcv genotype 1 - when i had my last interferon/ribaviron/improgen/nuprogen treatment 3 years ago my viral load was over 6,000,000. Within 6 weeks it was undetectable - That's the key to interferon- rapid lowering of viral load - if it happens, it's likely worked, if it's slow going down and detectable after a a few weeks, probably not.

that said, there are two types of pegulated interferon - alpha2a and alpha2b - Italian studies show that genotype 1 responds significantly better to alpha2a. they also found that thin people respond better to treatment-

i've worked as a peer-educator and the best advice i can give is not to listen to those that practice HCV treatment part-time - get yourself into the UC system if at all possible - failing that the VA - these guys see 100s (1000s?) of HCV patients and are far more likely to explore treatment options than dr bob in east bumfuck

[Flyinghigh63]

I am hopen for a treatment that will kill the Hep c and we all can have a healthier lives...
I often wonder why the HCV Doc hasn't found a cure for this disease by now after 20 or so...
As for now I WILL NOT DRINK ALCOHOL, or Do Street Drugs, and watch what Meds I take from the Doc. But have to take Norco for back pain and only
take 1 7.5 in the morning and that it and wish I didn't have to take that and have this Damn back pain all the time..

Live Life Today & Think About Tomorrow For Hope In Cure..

[pist]

What new treatment for HCV?

[Lord Romulan]

I went through the interferon/ribavirin treatment in Denver last year. It was unsuccessful. My viral loads did not disappear completely

I moved back to CA last Jan. My doctor in Denver, suggested I go to UCLA , because they most likely will have clinical trials. They don't. They don't have any in the pipeline either. In fact, after the 2nd appointment, the doctor referred me to Cedar Sina. I'm on there list for a clinical trial.

If you are in the LA area and are a non responder, I would contact Cedar Sinai. UCLA is a joke. It cost $11.00 just to park your car. Except a 2hr wait for blood work. The doctors are seeing so many patients, I don't know how they can manage anything.