[lovingherb]

My doctor gave me Lyrica. I took it for a year. I gained 30 pounds and it didn't help my pain at all. The weight didn't start coming off for almost a year after i stopped taking it. The thing that scares me about the pharma drugs is my need for long term chronic relief. They all have dangerous side effects, etc. Cannabis works well for me and helps with all of my symptoms. It makes the difference between suffering and living. I am grateful for my cannabis. Oh, and I LOVE being high! Happy 420 all!

[indigonightowl]

Originally Posted by lovingherb

My doctor gave me Lyrica. I took it for a year. I gained 30 pounds and it didn't help my pain at all. The weight didn't start coming off for almost a year after i stopped taking it. The thing that scares me about the pharma drugs is my need for long term chronic relief. They all have dangerous side effects, etc. Cannabis works well for me and helps with all of my symptoms. It makes the difference between suffering and living. I am grateful for my cannabis. Oh, and I LOVE being high! Happy 420 all!

Oh my GOSH - people in my family (haha, and my mother-in-law) keep trying to push Lyrica on me - I'm getting phone calls from random people going, "Did you hear there's this new drug for fibromyalgia??" I have to explain to them that it's not new, and that I'm not going start taking it. God knows what the long-term effects are with some of these medications, never mind the short-term side-effects. At least cannabis is has been around long enough (no kidding, right?) that we know exactly what to expect from it in the short term and over time.

[deaftoker]

Hello all, I am also a fibromyalgia sufferer like all of you. It started 3 years ago after I got nerve pain all over my body (cancer chemotherapy side effects). Believe me, I've tried so many rx medicines from several dr that specializes in fibromyalgia. I had taken 15 daily. I work daily and couldn't function too well at my job or at my home. I still take prozac for pain and depression. I had stopped taking 15 pills and started on the mmj. Love that alot and am very happy with mmj. I usually smoke sativa for energy, pain relief, nausea. I smoke indica only before I go to bed and sleep all night.
for my work, I take Organix hash pill and it worked well from 7 am till 2 or 3 pm. No way for me to take prescription medicines, that can cause liver/kidney/stomach./etc damages in the long run.
When I smoke sativa mmj in morning or daytime. I smoke 3 to 5 times a day. Sometimes I felt the local pain but not all over. It lets me know there's something wrong with local pain. It was muscle spasms and strains under my right breast (I had 4 surgeries) for breast cancer on right side. The strains went away when I had to take strong rx medicine. Now I am off the rx and back to mmj. It takes time to figure out what you really need rx or mmj. I had to take rx medicine for strains for 4 weeks because if I cough, sneeze or breathe, I get sharp pain.
You all need to be carefully decides what is best for you. Overall I prefer mmj all the time. I will take rx if I have to.....

Peace to all.

Hi deaftoker, welcome to the site. What an ordeal you've been through! I asked you a question in a rep comment but forgot that you can't send PMs until you've made more posts. Sorry about that. Post some more so we can chat!

[Indigosky]

Originally Posted by tubadjim

Let's all be real here, I've got severe Fibromyalgia, IM currently taking Lyrica, a new medication for Fibro, Pot does absolutely nothing to ease pain in fact it intensifies the pain and all you pot heads won't admit it, it does help me sleep. so go ahead and use your grass for getting High not for pain relief because it does nothing but make it worse, period!

That's so sad that you haven't gotten relief. Have you tried other strains? Some don't work for me, but others, well...it's as close to being completely painfree then I have been for many, many years. I found in my medical records, during my disability hearing, that I show'd signs of Fibro back in my very early 20's (just turned 49) The pain meds (when the military would feel like giving any!!) just made me sick to my stomach, and I was beinig to show signs of liver damage. Thank God for my MMJ! I hope you can find some relief.
But please don't judge us that way. :tsad:

[seb_a]

I find some sativas can make me more aware of the fibro-pain. I hope its not all sativas because I don't want to quit on that strain entirely. But honestly I don't even buy sativa dominant weed anymore because of the fibro-pain.

I have been rolling joints with Organic OG Kush, Purple Kush, Master Kush and Bubba Kush and I feel pain free and medicated to the moon. MMJ helps my back pain, my nausea and my fibro-pain, without it I suffer in this life.

Originally Posted by seb_a

I find some sativas can make me more aware of the fibro-pain. I hope its not all sativas because I don't want to quit on that strain entirely. But honestly I don't even buy sativa dominant weed anymore because of the fibro-pain.

I have CFS and not fibro but I totally hear you. I used to get sativas but as I have declined in health, I find I can't tolerate them so well anymore. I much prefer indica-dominant hybrids and light or heavy indicas these days. There are a few exceptions -- I find Cough has a very comfortable effect without the "nasties" I can get from a strong sativa -- but mostly if I want or need a sativa effect, I will mix about a 40 sativa/60 indica bowl.

Sad because Chemdawg used to serve all my needs.

EDIT: Did anyone hear about Cymbalta having been approved for fibro? I wonder if it will work for people who cannot tolerate Lyrica.

[seb_a]

Originally Posted by darkintheglow

I have CFS and not fibro but I totally hear you. I used to get sativas but as I have declined in health, I find I can't tolerate them so well anymore. I much prefer indica-dominant hybrids and light or heavy indicas these days. There are a few exceptions -- I find Cough has a very comfortable effect without the "nasties" I can get from a strong sativa -- but mostly if I want or need a sativa effect, I will mix about a 40 sativa/60 indica bowl.

Sad because Chemdawg used to serve all my needs.

EDIT: Did anyone hear about Cymbalta having been approved for fibro? I wonder if it will work for people who cannot tolerate Lyrica.

I have never tried any medication other then MMJ for my Fibro pain. Cough? never heard of it, i am still experimenting with Sativa strains to see if they effect me less but havent really found one

kinda sucks cuz sativas give u a nice head feeling different then pure indicas

[BabyBoomer]

Being an Autoimmune Deficiency sufferer, (Lupus) I have really been suffering lately. I usually have these flares in the winter time.

I just recently had an appointment with my Rheumatologist and he said that I should be sure and stay out of direct sunlight and not get over-heated. And that applies to any Autoimmune Deficiency patient.

Are you experiencing the same problems? For those that have fibromyalgia, epstein-barr, lupus, etc. ???

The vitamin infusion don't seem to be working. And sleeping 23 hours a day is not an option, but that sure is what I feel like.

Hope you all are doing well.

Hugs



.

Originally Posted by seb_a

Cough? never heard of it, i am still experimenting with Sativa strains to see if they effect me less but havent really found one

I got Cough from CRC, not recently though. Have you been there and talked to Morpheus? He is really a genius at finding the right strain for the right problem. Then again you may just not be able to tolerate pure sativas anymore, but there are so many hybrids that give you the sativa-like feeling without the body pain.

Originally Posted by BabyBoomer

Being an Autoimmune Deficiency sufferer, (Lupus) I have really been suffering lately. I usually have these flares in the winter time.

I just recently had an appointment with my Rheumatologist and he said that I should be sure and stay out of direct sunlight and not get over-heated. And that applies to any Autoimmune Deficiency patient.

Are you experiencing the same problems? For those that have fibromyalgia, epstein-barr, lupus, etc. ???

The vitamin infusion don't seem to be working. And sleeping 23 hours a day is not an option, but that sure is what I feel like.

Hope you all are doing well.

Hugs



.

Whoaaaa...are you serious? I have both autoimmune stuff (Graves', in remission) as well as CFS, and I have been absolutely wiped out lately! I can't get enough sleep. And there is no particular reason for it, I have not been exerting myself outside of 30 minutes of low-level yoga every other day, I just can't seem to do anything!

You and I could just be a coincidence (I'm also underneath this Everest of stress at the moment, to which I attributed my current issues) but that's still kinda freaky.

That's really good to know about the sun. I tend to avoid it anyway because I'm really fair-skinned but I had been planning to take some short walks and I'll remember to find benches and whatnot out of the sun.

[gigman4202]

thats bull i have fibro and a really messed up back i dont know were u get ur meds from but were not potheads we do smoke it just to get loaded it helps each person in a different way just cause u tryed some and it didnt help with ur pain sorry but dont go calling poeple with real problems like fibro so do come on and slam other ppl because something didnt work for you

[BabyBoomer]

Originally Posted by gigman4202

thats bull i have fibro and a really messed up back i dont know were u get ur meds from but were not potheads we do smoke it just to get loaded it helps each person in a different way just cause u tryed some and it didnt help with ur pain sorry but dont go calling poeple with real problems like fibro so do come on and slam other ppl because something didnt work for you

Who are you addressing your post to?




.

[deaftoker]

Originally Posted by BabyBoomer

Being an Autoimmune Deficiency sufferer, (Lupus) I have really been suffering lately. I usually have these flares in the winter time.

I just recently had an appointment with my Rheumatologist and he said that I should be sure and stay out of direct sunlight and not get over-heated. And that applies to any Autoimmune Deficiency patient.

Are you experiencing the same problems? For those that have fibromyalgia, epstein-barr, lupus, etc. ???

The vitamin infusion don't seem to be working. And sleeping 23 hours a day is not an option, but that sure is what I feel like.

Hope you all are doing well.

Hugs



.

Stay out of direct sunlight? Oh no. All of us do need sunglights, but not too long. Sunlight provides vitamin D that fibromyalgia needs more. I usually stay out of sunlight on very hot day. I sit out in sun everyday in morning, and evening. On very hot day, I go out do the chores, it was hell for me. I avoided very hot day if I have to. I go for walk early morning or early evening. I have right arm lymphedema from lymph nodes removal for caqncer. My right arm tends to swell alot during hot days.

My fm tends to be worse on hot days, coldest days and high humidity days. So I take easy on these kind of days.

For my severe fibromyalgia, I prefer use sativa for energy. I use indica for sleep or severe pain. No matter what you use, you will still have "localized" pain. Localized pain means your body has high pain in one area. I have localized pain in shoulder and back and front of my right breast. That's where the mastectomy, radiation and complex surgery for my breast cancer. But the sativa and indica depressed the all over body pain.

I use small vaporizer and loving it instead of smoke. I had to smoke once while when I am out of my home. I am looking to buy portable vaporizer for outings.
First thing of all, change the diet. I've lost 15 lbs in 2 months. I am still losing more. The diet should be lots of fruits and veggies and protein. I stayed away from high carb such as sweets, breads, pasta since these make my fm worse.
My energey is still up and down daily. I had been off from work since 4 months now.
If I have no energy at night, I go for fruit smoothie. Get nutrition as much as you can.

[deaftoker]

I live in San Bernardino mountains. I go to LA downtown or San Fernardino Valley to purchase medicine for myself and one person with license.

For anyone who need medicine, let me know. I'll be happy to get them for you. I am a caregiver for a coop that I can pick up medicine for you. I only need is your form of medical doctor's approval and copy of driver license.

[BabyBoomer]

Originally Posted by deaftoker

Stay out of direct sunlight? Oh no. All of us do need sunglights, but not too long. Sunlight provides vitamin D that fibromyalgia needs more. I usually stay out of sunlight on very hot day. I sit out in sun everyday in morning, and evening. On very hot day, I go out do the chores, it was hell for me. I avoided very hot day if I have to. I go for walk early morning or early evening. I have right arm lymphedema from lymph nodes removal for caqncer. My right arm tends to swell alot during hot days.

My fm tends to be worse on hot days, coldest days and high humidity days. So I take easy on these kind of days.

For my severe fibromyalgia, I prefer use sativa for energy. I use indica for sleep or severe pain. No matter what you use, you will still have "localized" pain. Localized pain means your body has high pain in one area. I have localized pain in shoulder and back and front of my right breast. That's where the mastectomy, radiation and complex surgery for my breast cancer. But the sativa and indica depressed the all over body pain.

I use small vaporizer and loving it instead of smoke. I had to smoke once while when I am out of my home. I am looking to buy portable vaporizer for outings.
First thing of all, change the diet. I've lost 15 lbs in 2 months. I am still losing more. The diet should be lots of fruits and veggies and protein. I stayed away from high carb such as sweets, breads, pasta since these make my fm worse.
My energey is still up and down daily. I had been off from work since 4 months now.
If I have no energy at night, I go for fruit smoothie. Get nutrition as much as you can.

Taken from the Lupus Foundation of America website, and so much more information on this subject. Here is just a tiny re-cap:

How does photo sensitivity show up in lupus?

1. Sunlight can cause new skin lupus lesions (sores).
   
2. Flares of internal lupus disease, including joint pains and fatigue, can also be triggered by sunlight.
   
3. Some medications increase the effects of the sun on a person's body. People with lupus taking these drugs including tetracycline antibiotics and many others may also very occasionally develop "phototoxic" reactions. These will lead to easy sunburning, so if you are taking these "photosensitizing" medications, you will need extra protection against sunlight. Ask your doctor or pharmacist if any of your current or new medications might make you extra-sensitive to the sun.

http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutaffects.aspx?articleid=94&zoneid=17

But of course, when in doubt, check with your treating physician. That is what I did.

Hugs and may your day be pain free.




.

[Lynn]

Originally Posted by tubadjim

Let's all be real here, I've got severe Fibromyalgia, IM currently taking Lyrica, a new medication for Fibro, Pot does absolutely nothing to ease pain in fact it intensifies the pain and all you pot heads won't admit it, it does help me sleep. so go ahead and use your grass for getting High not for pain relief because it does nothing but make it worse, period!

HI.. I have Fibro too, (for 10 years) along with O. A. Cannabis DOES help my fibro pain. I guess maybe the fact that we are all differant, and our pains are differant, that what helps one may not help another.. Peace Out :o)

[Sequoiacrone]

Originally Posted by Absynthe

I currently take for Fibromyalgia, Chronic Migraines, Peripheral Parathesia, RLS, IBS (or?), Insomnia, etc. My head is beginning to hurt, so I can't recall, sorry. This is what I normally take, every day:

10 mg Vicodin 3x per day
200mg Topamax 1x per day
Requip .5 mg 3x per day
Soma 350 mg 3x per day
Lyrica 75 mg 1x per day
Belladonna Phenobarbitol 3 x per day
Effexor 75mg 1 per day
Metoclopramide 3x per day
Diclofenac 75 mg 2x per day
Ambien 1x per day

Imitrex for breakthrough Migraines; Used to take Fiorinal
Was also on Cymbalta, but nearly ODd with 'Serotonin Syndrome' for being on two SNRIs (warning was on the Effexor LEAFLET only; had to help Pharmacist find it, when I acted really drugged out!). Take Albuteral for Asthma, a few times a week.

Oftentimes, I've wanted to simply not wake up from the side effects combined with the pain, because I spend 2/3s of every day down.

I suffer one thing that guy wouldn't understand, that only TWO of these drugs can only tap - NERVE pain! MMJ does, when I was ready to quit drawing.

Topamax btw, also stopped my hands from shaking. I had a traumatic brain and spinal cord injury reaching up to C2.

I started on 2/7/08, and am learning to titrate my dosage around, like what I do with my Fibro pills. I've finally been having real relief, and doing things again. I prefer Sativa, because of my former couch potato self from chronic pain. I do like Sativa/Indica hybrids, but so far, Sativa does just as good, and my eyelids aren't so droopy.

So, within a day or two, of smoking and sauteing my mmj, what do I say? I have more of my life back, than I have in 6 years so far! Wish I wouldn't have been so afraid to apply. I'll never forget the doctor's words, "Dear, you only needed two reasons - you have 10 legitimate reasons! Today, you start taking your life back, one day at a time." I cried, and it's true thus far.

Including vitamins, that's over 30 different shapes and sizes of pills to gulp down each and every day. I've felt the medical community just tosses pills at Fibro, or her sisters!!

I don't mean to glorify MMJ - but thus far, I've been having better days, and that is what I need. Cut out two designer drugs now, because of prohibitive costs, but find I don't need seem to need them.

Even my depression is improving, having come out of the Chronic Pain Fibrofog.

I am now able to meditate a wee bit, but still too squirmy to stay still, from the nerve pain down my back; when it gets stiff, I just have to move, or it becomes agony from that alone!

Also, I prefer hugs over handshaking - people often will crush my fingers together, causing me great pain all day. A normal hug is much more gentle.

Here's a hug and some love too. I work with an MMJ community organization in Oregon and I have seen LIFE taken back by people who suffer from this tragic and misunderstood disease. I have also seen many other benefits to friends with MS and going through chemotherapy. I am a patient too, diabetic neuropathy is very painful, and add RA on top of that and I can say I am lucky to have the OPTION of using MMJ in Oregon.

Blessings to you friend and thank you for sharing your story...

Sequoia Crone

[deaftoker]

I take sativa for my energy and I forget the pain except for the localized pain which is my shoulder. I take indica only at night. I made brownies with sativa, it gave me energy almost 3 to 5 hours. Try and experiment with food and see how it works for you.

[evielady]

How long have you been using MM for Fibromyalgia?

[evielady]

Amen, to that!

[evielady]

It doesn't take the pain away for me but it sure take the edge off eaiser than Rx does. So it actually makes it alot more barable.

[evielady]

I live in Rancho Cucamonga and can't find a dispensary locally. Please help!

[Nitro Gal]

I have been diagnosed with severe fibromyalgia for quite a few years now. I am currently on a clinical trial for Milnacipran, which is just about to be released for fibro treatment.

Milnacipran HELPS, but does not "solve" my problems. I get severe cramps in my back and calves, have trouble sitting for long periods and terrible problems with sleeping.

MMJ really helps me to sleep and helps to relieve the cramps

I consider myself very fortunate to be living in a state with such progressive views! I have friends in other states who simply cannot get the relief

I also have a torn ACL in my knee along with almost bone-on-bone arthritis and a biceps tendonitis in my shoulder

MMJ DOES help with the discomfort!

[Absynthe]

My accident was 5 years ago, diagnosed with Fibro & all 4 years ago.

For RLS, I take Requip, a Parkinson's disease drug in small doses, either .05 or 1.0 mg,
and that pretty much ends the cramping within the hour - that is amazing for me!

I just take it one day at a time - any more makes me go buggy, lol.

- Absynthe

[viciousbee]

Hello,
Just wanted to say "Hi", I'm new and was glad to see a place here for people suffering from Fibro, I've had it for almost four years.

Since I've started my MMJ, life has been so much better. I go out for a short walk everyday! I still have the pain but MJ just seems to place it far away, kind of like the pain has moved behind frosted glass. So I can do things, move around without feeling to bad. Of course I still have my "bad" days and there is not much that I can do but stay in bed and keep warm.

I have discovered that MJ works best in small doses at a time, if I take to much then It seems to have an opposite effect and I'm more aware of the pain. Has anyone else found that smaller doses, to work best for fibro?

Like I said I'm new to MMJ and I was just curious as to which would be better, an Indica or sativa for fibro and what you guys find works best for you. So far I have been using Headband OG, and it works good. I'm very interested in making a tincture to use in a tea, any advice is greatly appreciated.

Love&Light