[js955]

Hi everyone

I have crohn's disease like many of you here. I am 23 and was diagnosed when I was 17.

I medicate with cannabis mainly to relieve that awful "unstable" feeling and the cramps that come when I'm making lots bathroom trips because of flares (unfortunately almost every day, or multiple times a day for me).

I currently take mesalamine (lialda) and nexium but they have totally stopped working. I don't want to take any of the 6MP immunosuppresants my doctor is recommending because my boyfriend is a chemo patient (what a sickly pair we are!) and two immunosuppressed people together is not a good situation!!!

So he's prescribed this probiotic called VSL #3. It's really expensive and comes in packets that are filled with powder and it's got to be in the fridge. Anyone else have experience with it? I'm just about to start mine.

[Crohnie]

Haven't heard of that one, but I have used many, and the one that seems to be the best is Natren probiotics. They are also refrigerated, and you can get it in powder or capsules. The powder is really disgusting tasting so I recommend the capsules.

I am on 6MP myself, 100 mg. a day, and I still have flares. I wouldn't worrry too much about the immunosuppresants, unless you are typically someone who gets sick alot. Just remember to get your flu shots, wash your hands alot (hand sanitizers work great), and try to stay away from people who are sick.

vsl#3 is usually insurance reimbursable and is a Doctors' favorite. most GI docs like it...it's a bit expensive. works for me. natren's "trinity" is an alternative and contains more forms of bacteria than vsl#3.

i was on remicade for 3 years and have stopped treatment with it as i haven't had a flare in 14 months without it. befor remicade, i was in hospice every other month....

it's important to remember to avoid stress (ya sure!) and food based triggers! a candida clense and refined coconut oil are most helpful to myself and other crohnies i know.

best wishes,
99.9%

[pushinweight]

Originally Posted by Crohnie

Haven't heard of that one, but I have used many, and the one that seems to be the best is Natren probiotics. They are also refrigerated, and you can get it in powder or capsules. The powder is really disgusting tasting so I recommend the capsules.

I am on 6MP myself, 100 mg. a day, and I still have flares. I wouldn't worrry too much about the immunosuppresants, unless you are typically someone who gets sick alot. Just remember to get your flu shots, wash your hands alot (hand sanitizers work great), and try to stay away from people who are sick.

good job chronie your doing the right things just stick in there with the natrens friendly bacteria..codliver oil (soy free)and you'll be 100 percent in a couple years...natrens HEALTHY TRINITY probiotics are the only real probiotics and they instantly gave me relief from the first 5 minutes of taking them..its so vital that people with chrons eat animal fats and coconut oil..this is the only way to heal your disease trust me i've had it for 17 years and READ EVERY HEALTH BOOK KNOWN TO MAN...throw away your dr. prescribed medicines before your life gets flushed down the toilet...

[GreekPrincessLA]

[QUOTE=99.9%;387852]vsl#3 is usually insurance reimbursable and is a Doctors' favorite. most GI docs like it...it's a bit expensive. works for me. natren's "trinity" is an alternative and contains more forms of bacteria than vsl#3.

i was on remicade for 3 years and have stopped treatment with it as i haven't had a flare in 14 months without it. befor remicade, i was in hospice every other month....

it's important to remember to avoid stress (ya sure!) and food based triggers! a candida clense and refined coconut oil are most helpful to myself and other crohnies i know.

best wishes,
i agree with u here , yes bingo candida is one cause of gut diseases , a diet free of sugar grains gluten dairy is key example organic meats , eggs , good fat like ghee and coconut oil as as well as non starchy veggies :) thatsabout it .. the diet builds ur immune system and fights off infections so u wont get cancer or crohns or bi polar ;)

[GreekPrincessLA]

Originally Posted by pushinweight

good job chronie your doing the right things just stick in there with the natrens friendly bacteria..codliver oil (soy free)and you'll be 100 percent in a couple years...natrens HEALTHY TRINITY probiotics are the only real probiotics and they instantly gave me relief from the first 5 minutes of taking them..its so vital that people with chrons eat animal fats and coconut oil..this is the only way to heal your disease trust me i've had it for 17 years and READ EVERY HEALTH BOOK KNOWN TO MAN...throw away your dr. prescribed medicines before your life gets flushed down the toilet...

WOW i agree with u too on this one great probiotics and diet plan god bless :)