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| Digestive Disorders Discussions of medical issues and treatments specific to Digestive Disorders. |
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07-08-2007, 09:06 PM
| #1 (permalink) |
| Crohn's Patient  Join Date: Feb 2005 Location: west la Co-Op: No Vendor: no Patient: YES
Posts: 961
Rep Power: 2978      | Anyone Else on Remicade? I get remicade for crohn's, just wondering if there are others like me on WT |
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07-09-2007, 04:13 PM
| #2 (permalink) |
| WT Regular Join Date: Dec 2006 Co-Op: No Vendor: no Patient: Yes
Posts: 99
Rep Power: 12 | Re: Anyone Else on Remicade? Not yet. I'm on colozal, purinethol, and sometimes prednisone for UC, my doc says Remicaid is the next option....... any side fx? |
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07-09-2007, 07:34 PM
| #3 (permalink) | |
| Crohn's Patient Join Date: Feb 2005 Location: west la Co-Op: No Vendor: no Patient: YES
Posts: 961
Rep Power: 2978 | Re: Anyone Else on Remicade? Quote:
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07-10-2007, 01:02 PM
| #4 (permalink) | |
| WT Regular Join Date: Dec 2006 Co-Op: No Vendor: no Patient: Yes
Posts: 99
Rep Power: 12 | Re: Anyone Else on Remicade? Quote:
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07-10-2007, 01:17 PM
| #5 (permalink) | |
| Crohn's Patient Join Date: Feb 2005 Location: west la Co-Op: No Vendor: no Patient: YES
Posts: 961
Rep Power: 2978 | Re: Anyone Else on Remicade? Quote:
IBS, GERD, etc. Next meeting will be Saturday July 21, 2007 @ 8pm West Coast Collective 3133 San Fernando Rd. Los Angeles, CA | |
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07-11-2007, 04:00 AM
| #6 (permalink) |
| Hi, Im New!  Join Date: Jun 2007 Location: Bay Area, California Co-Op: NO Vendor: NO Patient: YES
Posts: 15
Rep Power: 0 | Re: Anyone Else on Remicade? I take remicade for crohn's also. Every month. |
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07-12-2007, 10:23 AM
| #7 (permalink) |
| weee Join Date: Dec 2006 Location: So Cal Co-Op: No Vendor: No Patient: YES
Posts: 271
Rep Power: 1621 | Re: Anyone Else on Remicade? ffffffffffffffff Last edited by SmokeTheState; 10-25-2009 at 03:26 AM.. |
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08-04-2007, 07:54 PM
| #8 (permalink) | |
| Crohn's Patient Join Date: Feb 2005 Location: west la Co-Op: No Vendor: no Patient: YES
Posts: 961
Rep Power: 2978 | Re: Anyone Else on Remicade? Quote:
when i wasnt doing so great ive gotten my dose on 6 or 7 week intervals.... | |
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10-19-2007, 12:28 PM
| #9 (permalink) |
| Hi, Im New! Join Date: Oct 2007 Location: Valley of the winds Co-Op: no Vendor: no Patient: yes
Posts: 43
Rep Power: 73 | Re: Anyone Else on Remicade? I am on Remicade every 6 weeks. It worked great the first around but then I had to go off for 6 months (insurence red tape). Now I have some problems with side effects. New to WT nice to find other Crohnies. |
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10-31-2007, 02:34 AM
| #10 (permalink) | |
| High, I'm New Join Date: Oct 2007 Co-Op: NO Vendor: NO Patient: YES
Posts: 1
Rep Power: 0 | Re: Anyone Else on Remicade? Quote:
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10-31-2007, 06:53 AM
| #11 (permalink) |
| WT Advanced Member  Join Date: Feb 2007 Location: West LA Co-Op: NO Vendor: NO Patient: YES
Posts: 643
Rep Power: 123 | Re: Anyone Else on Remicade? I have been using Humira for 2 1/2 years now for Rheumatoid Arthritis and used Enbrel for about a year before that with perhaps a year break in between. RA is an auto-immune disease, but don't know much about Crohn's-- there are like 100 forms of RA- is Crohn's an RA-type auto-immune disorder? The Humira has allowed me to work full-time and then some and function daily- well, most days, unless I'm having a flare-up; without it, I'd be retired/disabled at this point. I cannot medicate without MMJ during work due to the nature of my work, but, it is a Godsend when my work day is done. These plus a bunch of other stuff are my secret and the reason why I am working several years after my rheumatologist said I would have to hang up my spikes and retire. I wish all of you a lot of luck in finding what works for you- keep experimenting and don't give up-- a positive attitude is a huge part of it. But, don't overdo it either (famous last words)- moderation is also the key- and get 8-9 hours of sleep per night-essential. |
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12-12-2007, 09:45 PM
| #12 (permalink) |
| High, I'm New  Join Date: Nov 2007 Co-Op: no Vendor: no Patient: yes
Posts: 5
Rep Power: 0 | Re: Anyone Else on Remicade? i was on remicade for a while at uci in orange it really didn't help me .now i am on pentasa 16 pills a day and pot helps me a lot specially with nausea and stomach pain but pot is so expensive and its not covered by the insurance so i am unable to use it for those reasons and i thought these co ops were suppose to have compassion laugh.$$$$$ |
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01-16-2008, 12:34 PM
| #13 (permalink) |
| Hi, Im New! Join Date: Oct 2007 Location: Valley of the winds Co-Op: no Vendor: no Patient: yes
Posts: 43
Rep Power: 73 | Re: Anyone Else on Remicade? Here we go again. They took me off Remicade again. I was supposed to have my infusion on a monday. Got a call the fri. before telling me -sorry your old authorization expired and we forgot to get a new one.  Can you believe this!! It took six months the last time.At least the rashes went away  |
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