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Old 07-10-2009, 03:00 PM   #11 (permalink)
rpeg
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Re: Ehlers-Danlos Syndrome

I also have some sort of rhumatoid arthritis thing going on, so when I went to the rheumatologist for that, he realized that my range of motion is WACK and we went from there. It's definately hypermobility type, rather than Classical or Vascular.

For pain management, all I really do is splint and swathe as needed. They wanted to start me on some heavy-duty drugs (injectables, etc.) and I told them to give me 6 months to explore other options. Went and got my medical marijuana letter, and I am completely off all meds for the arthritis and EDS! Still take an anti-depressant everyday, but 1 pill is much preferred to the 7 pills I was taking!
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