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Originally Posted by DSW90049  westlawfadeaway: Thanks! I had mine diagnosed about 6 years ago now. Prior to that, I and my friends/loved ones thought that I had an awful lot of isolated orthopedic problems~ I mean many many. The hydration point is excellent. It does help to drink huge amounts of water. Weather changes are what kills me. What I do for a living is also mondo stressful, but, I like to think that it is the good kind of stress. Problem is that RA does not know from good vs. bad stress. It all makes my joints and connective tissues hurt like an SOB and think that they have to mobilize their little microbic armies to fight off invaders who aren't really there.
MMJ really really helps, both with the chronic pain and with my mood when it all gets to me. It is such a bad joke that the feds don't get it. I truly wish I could share the pain with a few judges and maybe they would understand.
btw- thanks for the really nice PM you sent me when I first got on here. I am West LA based as well and, you know how I feel about the Grateful Dead.
Thanks again for the help and thoughts. This disease is a real bitch because I look healthy and vigorous and like I am in great health, so a lot of people wonder why I go home after work and don't want to do things and why I need to rest so much on the weekends and go to bed early. Also, this disease won't kill you- it just makes you feel that it is. |
You know, I was just recently sent to a rheumatologist because my Drs can't figure out wtf is wrong with me. I mean, besides the disc disease & scoliosis, there's something else going on. I really identify with your comments about being sore, achy & in pain all the damn time. I feel like I'm 86 instead of 46
But the rheumatologist says that I don't have rheumatoid arthritis, or lupus, or......... In other words, they're stumped. So onward I go - next stop is an orthopedic specialist. Oh boy !
I'm also a 'type A' personality, so I know exactly what you mean about good stress & bad stress. I've been off work for almost a year now & it's making me insane. I swear, my house is in a frightening state of organization now, I've got nothing else to do but clean and organize
It's funny, because I also APPEAR to be 'normal' (whatever that means
). Altho I limp like a mofo, I look really healthy - good color, happy & upbeat attitude (thanks to MMJ!) etc. People tend to judge based on appearance, which is a shame.
And I'm always happy to chat with a fellow Deadhead - PM me anytime
